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FIONA752
#21 Posted : Saturday, November 03, 2012 8:32:17 PM Quote
Rank: Advanced Member


Groups: Registered

Joined: 12/4/2009
Posts: 312


Hi gogs,

Welcome to the forum.

I am sorry we have to meet this way, with R.A, but I find your posts to be articulate and

expressive.

My name is Fiona, I'm 55 and have had R.A for about 17 or 18 years now.

I will keep an eye out for your posts and hope to keep in touch via the website!

Warm wishes to you.

FionaSmile

Julie191
#22 Posted : Friday, November 09, 2012 3:59:24 PM Quote
Rank: Member

Groups: Registered

Joined: 9/20/2012
Posts: 23
HI Gogs,
I have been on Methatrexate over a year now and was soo frightened when they first told me due to the things I had read. Unfortunately it didnt work well enough so Sulphazaline was combined with it. This combination worked for a few months but a few months ago every thing went bananas ! Due to my bloods being so high it was decided I needed to go onto anti tnf -InfliximabSad . I was so scared and still am about the amount of chemicals I am putting into my body but I have reached the point where I can't stand living in pain all the time and will try anything. I had my first infusion yesterday and although I have not had a 'ta da' moment I do have a hopeful feeling which I haven't felt for ages. I met lovely positive people just like the ones on this forum, all of them glad they had tried it so I think sometimes we just have to give things a go and hope that we get some quality of life back. I am soo pleased you are pain free, I had several steroid injections but unfortunately they didn't work for me. We are all different and respond differently but hopefuly we will all find the drug that works for us and will give us a painfree life. Take care and enjoy that lovely feelingSmile Hugs Juliex
gogs
#23 Posted : Saturday, November 17, 2012 5:05:27 PM Quote
Rank: Advanced Member


Groups: Registered

Joined: 10/20/2012
Posts: 304
Location: Cheshire
Hello Fiona and Julie,

Thank you so much Fiona for those kind words!

I went to my GP's yesterday and saw a different doc. Initially I had a lovely doc. but sadly she was a locum who moved on in July which was also after I had also immediately been diagnosed with RA.
I then went to see another partner in the practice whom I felt experienced my saga as a complete yawn. I decided I might be judging her too harshly and should wait until my next
visit which produced the same feeling.
I might add at this point that I'm going through a nasty grievance situation at work relating to bullying over a period of two years, I came off work in April, Had a knee op early June,
was diagnosed with RA at the end of June, my husband had a stroke early July, and I was further diagnosed with Pulmonary Fibrosis in August. Enough of that but I need a supportive GP.

I tried another one yesterday and he seemed very sympathetic and supportive - so here's hoping things look up again as I need that support especially with work.

I think also I might be getting back some twinges of pain in my feet ( it's nearly four weeks since my last injection which I reluctantly agreed to have, but surprised me how well and painfree it made me), I hope not as I have made all sorts of plans for my husband to be looked after allowing me to take a weeks holiday.
A friend of mine, who is also at the top of her field as a Pharmacist, told me that the steroid injections last three months. This must surely be an academic view point and not one based
on experience as I have read many posts on this forum all stating that these injections last 3 days to 6 weeks - further input would be appreciated please.

I do find this forum and all of you very kind and helpful, and always full of very sound advice.

Thank you Julie and Fiona, and all of you for your sound input which I find very valuable.
Gogs
sylviax
#24 Posted : Sunday, November 18, 2012 8:58:51 PM Quote
Rank: Advanced Member


Groups: Registered

Joined: 5/28/2012
Posts: 665
Location: Newton Abbot
Hi Gogs - hope you've had a good day today. The weather has been really sunny here in Devon, and that boosts my mood - nothing feels so bad when it's a lovely sunny autumn day! Hope you're still enjoying the effects of the steroids - when I had mine, they seemed to last for quite a while, pretty much until the other meds took over, hope that's the same for you.

Best wishes - Sylvia xx
Be kinder than is necessary because everyone you meet is fighting some kind of battle
Valerie-R
#25 Posted : Friday, November 23, 2012 1:25:07 PM Quote
Rank: Advanced Member

Groups: Registered

Joined: 5/22/2010
Posts: 51
Hi Gogs,Oh my dear what an awful time you are having,I too have a lung problem Bronchiectasis also oesophagus as to be dialated twice a year.I take 20mg mtx sulphalazine every day steroids 30mg every day injection called Enbrel,my consultant really had to think hard as with a lung problem it almost impossible for treatments.I have been on the injections 9 months now.Yes!! i still have flare ups but not so often as i did.Do not give up hope Gogs there must be something out there for you.When you do have flare ups rest rest & more rest apply icepacks to the area take you pain killers.Hope you husband is a little better each day?
Keep strong
Valerie-R
gogs
#26 Posted : Friday, November 23, 2012 4:15:48 PM Quote
Rank: Advanced Member


Groups: Registered

Joined: 10/20/2012
Posts: 304
Location: Cheshire
You are an amazing group of people - thank you.

When I read someone's reply to me I feel so connected to another human being who understands where I'm coming from.

I have an emotional lump in my throat with gratitude to you all.

Gogs
zena_mary
#27 Posted : Saturday, November 24, 2012 6:01:02 PM Quote
Rank: Advanced Member


Groups: Registered

Joined: 1/21/2012
Posts: 388
Location: Powys
Hi Gogs a belated welcome from me ! I'm a bit slow off the mark.
Just to say, definately, do not be afraid to speak out at your app.s and to express how you feel.
One thing I have really learned since having ra is not to be afraid of being a nuisance.
It is sometimes very difficult to express yourself when you are feeling very ill, low and unsure and we tend to think they are the professionals and they know best but we do have choices!
i used to be afraid of upsetting the apple cart, but think I have actually gained respect by speaking my mind and expressing my worries.
Money is a very big factor in drug decision making. Nice have guide lines that have to be adhered to.
Dmards did not do the job for me on their own and I an now on my third biologic, with successs at last.
Hope you get sorted soon. Steroids are a wonderful thing, glad you are feeling better.
Best wishes Zena x
jenni_b
#28 Posted : Monday, November 26, 2012 12:21:41 AM Quote
Rank: Advanced Member


Groups: Registered

Joined: 12/3/2009
Posts: 2,237
Location: nr Southampton
I'm Jenni gogs and I'm pleased to meet you and read your thread.
Your husband won the marriage jackpot with you!
Think you're amazing looking after him when so unwell yourself

The steroid jab is fab
Short term- yes
But some people manage yrs inbetween

There are lots of different drugs yet to try- even with the lung thingy
I'm guessing they asked all about smoking
If you do smoke and give up that will help with the ra too

I'm off to the hospital tomorrow. I've got 2 appts tomorrow (not as blessed as some with THREE;)!)
I've got a hubby too- he's working pt now looking after me a fair bit.
We have 2 adopted teens and a birth child who has started school in sept and is 5

Try resting a bit- it makes he steroid last better

Jenni xx
how to be a velvet bulldoser
sylviax
#29 Posted : Monday, November 26, 2012 8:27:30 AM Quote
Rank: Advanced Member


Groups: Registered

Joined: 5/28/2012
Posts: 665
Location: Newton Abbot
Hi Gogs - hope you're having as good a day as possible - thinking of you and your hubby and wishing you both well - Sylvia xx
Be kinder than is necessary because everyone you meet is fighting some kind of battle
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